The government has actually refused to provide a licence for a six-year-old boy with an unusual form of epilepsy to be treated with marijuana oil, despite evidence that it has reduced his symptoms and assistance from MPs.
Alfie Dingley, from Kenilworth, Warwickshire, can suffer approximately 30 seizures a day. His mother stated they had actually decreased considerably in number and seriousness while he was in the Netherlands being treated with a prescribed, cannabis-based medication.
Members of the all-party parliamentary group for drug policy reform prompted the Home Office to enable him to use it.
However, the Home Office has actually dismissed it being recommended in the UK. The drug, a declaration stated, “can not be practically prescribed, administered or supplied to the public”.
“We identify that individuals with persistent discomfort and crippling health problems are aiming to minimize their symptoms,” a declaration said.
” However, it is essential that medications are completely evaluated to ensure they meet strenuous requirements before being placed on the marketplace, so that doctors and clients are guaranteed of their efficacy, quality and security.
” Cannabis is listed as a schedule 1 drug, as in its raw form it is not recognised in the UK as having any medicinal advantage and is for that reason based on rigorous control limitations.”
In September Alfie and his family remained at a holiday camp in the Netherlands so that he might take the cannabis oil medication prescribed by a paediatric neurologist.
His mother, Hannah Deacon, stated the marijuana dosage was really little– just three drops of the oil– but the outcomes had been remarkable: at one point her son went 24 days without an attack.
She told the BBC: “We never thought of how well it would work. He’s simply a six-year-old young boy, he should have a delighted life. We’ve discovered something that makes him delighted and now we’ve got to take that away.”
The family has returned to the UK to fundraise and lobby for a licence.
Maggie Deacon, Alfie’s grandmother, said they wanted to discover a way round inflexible rules. “Alfie has actually gone from a death sentence to the possibility of a more normal life with school, pals and fun in his own familiar home.”
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